Hi Matthew,
I am glad that you got an appointment with Dr Young. Your mother's case seems unique in that she has dramatic rises and falls. It will be interesting to hear what he recommends.
Dr Young is paid by our taxes  I think the only way you can be a "regular" patient is if you become part of a clinical trial. However, if your mother is on the path to wellness, he will be an amazing guide for both you and your mother's hematologist.
Good luck!
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55 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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