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Hi Mola-tecta,
You're correct...I completely missed your post. That happens on some of these longer, more active threads.
Glad your mom is holding at 8.3. And stopping the Exjade for a while is probably a good thing. If her EPO levels are low, I can understand him wanting to try Aranesp but if it's high (like over 200), I'm not sure it's worth it.
This year will be John's 20th year. He remains in a partial but stable remission. Red cells and platelets remain below normal but very livable. He sees his local hematologist annually. They still check for PHN which always comes back negative. The stress of blood draws will always be there....a bit of PTSD i'm sure.
Hang in there....M
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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