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Old Mon Mar 14, 2022, 04:21 PM
Matthew42 Matthew42 is offline
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Join Date: Jul 2021
Location: USA
Posts: 130
I am so happy for your dear mother, mola-tecta. I am jumping with joy for her.

Well, we sort of got pretty good news today from my mother's nurse at her hematology clinic. The nurse/doctor said that her blood is indeed holding for the first time in 10 months post-ATG. She will have gone almost 20 days without a blood transfusion. This is unprecedented on one unit of blood. She only dropped 2-3 tenths of a point in hemoglobin in 15 days. This is the first time my mother's hematologist was ever excited for her. While it's no guarantee that things will stay this way, it is a very good sign. The doctor said "holding" is key, and the most reliable for showing a real response to treatment (much better than rises with very steep falls that follow).

Her platelets are still really low, with no improvement at all.

Your mother's iron is fine. Please don't worry about it!!!

My mother's hematologist said that my mother needs to get her ferritin down to about 1500, and then under 1000. But she said that 3000 is not that big of deal at this point.


All is well, getter better!

Last edited by Matthew42 : Mon Mar 14, 2022 at 05:00 PM.
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