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Hi David,
Congratulations on your stable CBC's. May I give you my husband's experience with Promacta. He has MDS and needed over 125 blood/platelet transfusions in 2009 through the spring of 2011. After getting Campath which did nothing, he was the first MDS patient to receive Promacta at The NIH after their success with AA. He started in the spring of 2011 and when his platelets reached 100,000 in August, 2012 he stopped it. He remains transfusion free to this day. He had no side effects whatsoever. At the time he was in his early 60's and he is now almost 79 - nothing short of a Miracle.
I wish you the best!
Sally
And I should add that the only count that's still low are his platelets - they hover around 80,000 - 100,000. His whites are totally normal and his reds are just below normal - sometimes normal. All 3 lines were affected by his MDS.
Last edited by Sally C : Thu Aug 15, 2024 at 09:13 PM.
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