Hi David,
Glad you're hanging in there. John had stamina issues also. We did not have the option of Promacta back then. There were two areas we focused on for increasing stamina. ( I may already mentioned them. If so please excuse the repeat)
1 - Hormones: Get them all checked. We found John was not producing enough testosterone so he started using a bio-identical topical testosterone cream. And of course, not covered by insurance. And it's important to check and make sure your own and/or replacement testosterone is not converting to estrogen.
2 - Improve mitochondrial health to increase energy production in your cells: John used a supplement from Life Extension called Mitochondrial energy optimizer. There's a product called Mitopure which is used by many the sports world. The ingredient is Urolithin A. It can take 2 -3 months to see an improvement. But I personally feel that if your body really needs it, you'll notice the change sooner than someone in peak condition.
John was not able to sweep the sidewalk without taking multiple breaks. Everything exhausted him. Addressing these two issues made a world of difference for him.
Just food for thought....Hoping you find something to help. You get tired of being tired. I am glad that you are maintaining
Marlene
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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