Hi David,
I can't advise you but I will give you my husband's experience with Promacta.
After over 125 blood/platelet transfusions, he was the first MDS patient at NIH to be in the Promacta clinical trial. They had great success with AA patients. He started Promacta in the spring of 2011 and stopped in August, 2012 when his platelets hit 100,000. Here we are in 2024 and his reds are usually normal or near normal, his whites always normal after having neutrophils hitting 0.0, and his platelets hover around 80,000 - 90,000. He has not had a transfusion since. He had no side effects while he was taking it. It truly performed a Miracle for us.
Please keep us posted if you decide to try it. All the best,
Sally
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