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Old Fri Apr 4, 2025, 03:42 AM
LJones LJones is offline
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Join Date: Mar 2025
Location: London
Posts: 4
Thanks for the reply Matthew that?s very helpful
My fathers current numbers are

Red blood cells between 70-85 (transfusions weekly)
Platelets between 10-20 (transfusions twice weekly)
Neutrophils remaining constant at 0.1

We are now exactly 5 months after Horse ATG and absolutely zero improvement on any of them figures.

That?s good to know about other treatments. My father?s haematology dr has suggested a week in hospital with daily transfusions to get my dads numbers up to a ?normal person? number which will hopefully make him feel a bit better but obviously he will still need weekly transitions to keep his levels up that high. He seems to be shaking every evening now between 5-6pm for no reason.

Just hoping something positive happens soon.
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