View Single Post
  #5  
Old Thu Jun 4, 2026, 07:59 PM
Meri T. Meri T. is offline
Member
 
Join Date: Aug 2016
Location: Tokyo, Japan
Posts: 179
Hello Guy L
I?m glad your counts are stable after nearly a year, though the platelets aren?t cooperating enough.( They never do !) I remember every 10 days I needed a platelet transfusion, was the time my hematologist decided to have the transplant talk with me and my husband.
I was around 50 then, when I was diagnosed, fortunately with no mutations, but like you, I didn?t have much symptoms when I was diagnosed. Just an annual checkup that saw counts spiraling downwards every year, until the Lows made the chart red, and gave the doctor my first referral to see a hematologist.

Since you are a healthy 66 year old, and with good doctors to care for you, I believe you will do well with your chosen treatment.
Meri
__________________
Female born 1965, diagnosed MDS RAEB1 in August 2016, watch and wait for 9 months. Sibling match - Stem cell transplant in 2017.
Reply With Quote