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Rhonda,
I am sorry I don't have much info for you. Just wanted you to know I read your post. I do know that MDS doesn't always turn into AML. Also, many people live for years being transfusion dependent. I read on another forum that the former director(?) of the AA/MDS Foundation lived 18 years transfusion dependent. I don't recall the man's name, or if he was the director, but he had some significant position with the Foundation. You will want to watch his iron levels for iron build up from the transfusions.
Sorry I don't have more info for you.
Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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