New to site
Hello everyone,
I am new to the MarrowForums site and thought I would introduce myself.
My name is Marc and I am 46 yrs. old. My wife and I live in Aurora, IL. I was diagnosed with PNH and severe AA in feb. 2006. So far I have tried ATG (Horse), Procrit, steroids, etc... but have not seen any benefit. I average a blood and/or platelet transfusion every 10-14 days. My WBCs have not been a problem.
I am treating my PNH with Soliris and so far that has been helping so it is the AA that I am working on now. I do not have a sibling match for a BMT and the odds of success are a little too low for my liking right now to try one.
I am talking with my Hemo doc about a second round of AT (rabbit) or Campath or Zenapax. Has anyone tried these last two drugs yet?
I look forward to hearing from others with AA and wish everyone good health.
Marc
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Marc, Severe AA and PNH; diagnosed April 2006; Treated with ATG, currently taking Soliris
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