[MaggieW]

Hi everyone

My husband was diagnosed with MDS last week after 2 years of attending the hospital and having had two bone marrow biopsies (they lost the first one!!). Looking for information on mild MDS. My hubby has a high haemoglobin but is constantly tired and complains his arms feel heavy. He has chronic fatigue but otherwise fights off infections better than the rest of the family. We are hoping he will remain this way for years to come. Im concerned that the hospital are not looking to provide any sort of treatment and are not doing bone marrow tests on his brother and sister in case its needed later on. Is it normal to have this wait and see approach??

Best wishes to all fellow MDS forum members. M