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Old Mon Nov 26, 2007, 03:32 AM
Helen Robinson Helen Robinson is offline
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Join Date: Oct 2006
Location: NSW Australia
Posts: 32
MDS without dysplasia

Hello Chirley

A few comments. from my understanding anaemia in MDS is caused by too many immature red cells which do not deveop and provide the haemoglobin you need. You do not need to have a chromosome abnormality.

About the iron overload. I thought they measured this via the ferritin in a normal CBC not a BMB. Ask what your level is and think about chelation (the new oral chelator Exjade os on the PBS). Once the iron is high it is hard to reduce while you are continually having transfusions.

My husbands GP says that just because you have a rare problem it does not mean that you cannot have normal things such as arthritis. The first thing would be to try panadol and have faith in your physio. Mine is wonderful and the acupuncture can be a magic cure.

I am glad you are feeling better now. Keep smiling

Helen
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Husband, MDS 5q- 2003. Transfusions,desferal infusions, Revlimid 2007 partial remission. David passed away Nov 2010 with untreatable heart arrythmia probably from iron overload.
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