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MDS 5q- and PMR
Hello Jill
Welcome to a fellow aussie. I have sent you a private message about my husband's trials with PMR. Fortunately it began to "burn out" after 3.5 years, a long time, but there is light at the end of the tunnel.
He is also on Revlimid but it is beginning to stop working.
Looking forward to hearing from you and keep smiling
Helen
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Husband, MDS 5q- 2003. Transfusions,desferal infusions, Revlimid 2007 partial remission. David passed away Nov 2010 with untreatable heart arrythmia probably from iron overload.
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