Hi Kitty,
tried to reach you on the forum of the mds-foundation, there I wrote you some private mails, because I am trisomy 8 like you are and this is quite rare. You have never answered so far, so I presume you did not get my mails all over from my German adress. - I know two other persons in that forum who are RARS/trisomy 8, both are transfusion dependant.
I am not yet, EPO still works with me and keeps my HGB up (only between 10,0 and 10,4)...bur I would appreciate very much to get in touch about this trisomy 8. What have your docs told you about? It makes us intermediate 1, I know, it is not a good one, though better as abnormalities in 7 for instance.
Can you answer now,
or anybody else who reads one of her posts might tell her, that I urgently want to get in contact with her...
Thank you, Bergit
Besides, are there any other 8s out here? Give me a post.