What Next?
My mother is 84 years old and has been receiving blood transfusions for the 1-1/2 years for MDS. Since the summer, the transfusions were administered every 3-4 weeks instead of the usual 3-4 months. Now she has developed Iron Overload and receives Subcutaneous Desferal 8 hours/day. I was told that she would require medication for Iron Overload one day, but I was not prepared for the costs of a daily visit from the nurse.
As I am not in the same town as my mother, however, I am responsible for her finances and am not getting any straight answers from my siblings who are with her, I need to know what the next step is in the progression of this disease. I am not looking for medical advice, rather what I need to be prepared for and the possible time line.
Any information here would be greatly appreciated.
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