Hi Everyone!
I was diagnosed in June of this past year and at the time my only true symptoms were severe bruising, frequent infections and a feeling of having run a marathon each day. I was very tired but, figured it was due to the fact that I chased kindergarteners all day sometimes rather clumsily, and we had just had our son and daughter married in the previous year.Oh, did I mention I was in the middle of planning my parents 50th Anniversary Party, too? I am the worrier, and try to fix it person of my family which includes my incredible husband, 2 (now married) children, my parents and my husbands mom. Well, after one sinus infection after another and the concerns of my family and coworkers due to the bruising, I went to my Primary Care Dr. who upon seeing the colors and sizes of the bruising immediately ran a CBC, and also took a chest xray. Big confusion on my part as I truly didn't have time for all this nonsense. Well, as I am sure many of you have also found out sometimes we have to give respect to the "nonsense". Next day phone call to my classroom to suggest a visit to a Oncologist/Hematologist a.s.a.p....The rest is kinda a fog, low platelets...44,and other lows just under normal. Hmmm... really was a kink in my plan. 7 months later learning about the miracles of Revlimid and a dear brother who is a perfect match for a down the road SCT. But, I am trying to figure out if I am supposed to feel sore and tired as much as I do. Kinda whooped most of the time!! Some days I am still my old self but, there is no way to plan it. Major lifestyle change! But, with so many things working in my favor I continue to work hard at learning all I can and try to remember to count my blessings. Of which, finding this site and some of the kind people I have already spoken to are! Question is though, is it normal for me to feel this way...tired, short of breath and soreness in my muscles and chest? Are these normal signs of the anemia? Thank you all for your kindness, I don't feel so all alone now.
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Flowerlady, 49, Diagnosed MDS 5q- 06/07, Revlimid 07/07 - 11/08. Vidaza 12/08 - 3/09. Allogeneic Stem Cell Transplant 4/14/09.
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