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Sally,
I am glad you found us again. MDS is a roller coaster, isn't it? Are you low on iron, B12 and folate? I think it is pretty unusual to give iron to an MDS patient. Usually we are trying to get rid of too much of it. Have you tried Aranesp (even though it is almost the same as Procrit, apparently some folks respond to one better than the other at different times in the course of the disease), or Revlimid (I don't know what chromosome abnormalities you have).
Hang in there.
Zoe
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Diagnosed MDS-RA 5q- at age 47 (November 2006). Aranesp 2/07, good response.
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