Hi, Sally.
I remember you from the listserv days! You'll find several folks from the old group here as well as many new and extremely knowledgeable people.
I think Zoe is right that it seems strange to be having both transfusions and iron infusions. Have you had your serum ferritin tested? There a lot about the topic of iron overload in our
Transfusions and Iron Overload forum.
In the past couple of years several drugs, including Revlimid (as Zoe mentioned), Vidaza, and Dacogen, have become available for treating MDS so there are options besides transplant that didn't exist before. Choosing between these options is tricky and will depend, in part, on the current status of your MDS. Have you had a BMB since your counts started to decline again?
Sorry you're still dealing with MDS, but I hope Marrowforums can help the way the listserv did. Information and support are the keys.
Regards,
Ruth