Thread: mds
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Old Sun Mar 30, 2008, 04:04 PM
katherineann59 katherineann59 is offline
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Join Date: Jul 2007
Posts: 41
Vidaza

Hi Eileen,
I'd like it if you would keep in touch with me as well. I begin seeing a new oncologist next month - the one I've been with is closing her practice indefinitely. I've been told that I'm on vidaza for the long haul - however that will be. According to my oncologist, if you go off it for an extended period of time (more than one missed treatment cycle), it will lose it's potency and I'd have to try a new treatment. Have you been told anything like that? I may talk with the new oncologist about getting my meds through IV. Please know that you are in my thoughts.
Kathy
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Kathy, 47, diagnosed with MDS IPSS Intermediate Risk, Refractory Anemia and Thrombocytopenia both secondary to MDS. 8/06-treatments include 14 shots Vidaza monthly, aeranesp, neulasta when needed also have polycystic kidney disease
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