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I agree, if she's at 8.0 then she needs to be checked again and not wait two or three weeks. Did she just get a shot and are they assuming it's going to increase her HGB, therefore there's no need to see her? A HGB of 8 is usually when most people get transfused. If she's feeling poorly...headache, fatigue, lead legs, increased heart rate, etc...then I would call the doc. It's important to maintain safe HGB levels even while on Arenesp.
As to switching doctors within a practice...I've never heard of such a thing. You are paying for a service and if her current doc is not working out, then you should expect them to honor you request to switch. I would push the issue with them.
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Marlene, wife to John DX w/SAA April 2002, Stable partial remission; Treated with High Dose Cytoxan, Johns Hopkins, June 2002. Final phlebotomy 11/2016. As of July 2021 HGB 12.0, WBC 4.70/ANC 3.85, Plts 110K.
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