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Old Mon Apr 14, 2008, 07:54 PM
MNladyslipper MNladyslipper is offline
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Join Date: Mar 2008
Location: Albert Lea, MN USA
Posts: 16
Release of records

We go to "Release of Records" office. My husband signed a release allowing either of us to pick us his record. We just go there about an hour after his cbc and have them give us a copy. We three hole punch them and save them in a big three ring binder with the most current on top. We also record the 5 counts we are most interested in by date on a separate sheet of paper in the front of the notebook. This allows us to track changes much easier. We take the binder to doctor appts., the hospital, when we go out of town - just in case, etc. It contains everything we have gotten regarding his MDS diagnosis from day one. We are only three months in and the binder is almost full, so I can see us having several over time.
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Bev,husband diagnosed MDS RAEB-1, intermediate - high risk, lots of chromosome damage Jan. 2008; Revlamid, awaiting cord transplant.
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