RAEBI or RAEBII ?
Can anyone help to clarify my husband's diagnosis? He was diagnosed the end of January with MDS. The prognosis is 9 - 18 mos. He has 11 out of 20 chromosomes damaged including -5qdeletion, monosomy7 and deletion of 20. Two lines are affected. Two doctors have said he is at an Ipps score of 2 and one said because of the chromosome damage he is at "high risk." His blasts are less than 10%. We thought he was RAEB II because of his IPPS score, but now I read that less than 10% blasts is level I. The doctor also mentioned "overlap syndrome" and "myleoproliferative" on our last visit. Now I am more confused. He is currently on his third cycle of Revlimid with no time off. It is just a continuour perscription every 28 days. He began on 10mg was switched to 5mg and now is on an every other day regime of 5 and 10mg. His hemoglobin has been fairly steady at about 9, his white count is at 1.4 and his neutrophils are at 0.4 after dropping to a 0.2 a couple of weeks ago when he was in the hospital with a week long bout of diverticulitis. We are looking at a cord blood transplant sometime this year at the Univ. of MN - Fairview. Any help or advice would be appreciated. Thanks
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Bev,husband diagnosed MDS RAEB-1, intermediate - high risk, lots of chromosome damage Jan. 2008; Revlamid, awaiting cord transplant.
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