Quote:
Originally Posted by Joanne
Do you think it's because she is still in the low risk group? She has no symptoms and wouldn't have even known she had the disease until she was convinced to have a bone marrow biopsy (at the urging of my sister) because of her excessive iron.....
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I too am in the relatively low to intermediate risk group, at least for now. They Know what I have but my blast are <5% and HGB is at 10.9, so the numbers just aren't there yet. My disease is graduating very slowly and I too am constantly being told by my Primary Care and my Hema/Oncologist to be patient and "wait and see". It's a numbers game and they seem reluctant to expend time and drug treatments until the "numbers" hit certain thresholds. In the mean time I am extremely fatigued and tired a lot. But don't let them tell you there are not drug and treatments out there and it seems new ones being tested all the time.