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Old Fri Jun 20, 2008, 07:56 AM
Suzanne Suzanne is offline
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Join Date: Mar 2008
Location: Long Island, NY
Posts: 48
He said plateles are normal. White's are low and Hemoglobin 6.8

I find myself wondering if this is the right doctor for her. She is very comfortable with him, but I don't know if he really knows how to treat this disease. There is an MDS doctor of excellence literally 5 doors down from him....Dr. Steven Allen and I think she should get an second opinion from him. She gets very upset when I suggest this because she likes her current doctor and he did a great job with her lymphoma. How do I make sure he is qualified??

In the meantime we have tons of unanswered questions and are left wondering how does mild disease become totally out of control in 2 months???
__________________
Mom 69 diagnosed with MDS RA 3/08
TLK-199 started 7/17/08 - no response
Vidaza started 12/15/08 - no response
Dacogen started 01/10 - no response
Bone Marrow Biopsy 10/10 - 13% blasts
Bone Marrow Biopsy 12/22/10 - 45% blasts - AML
I have an angel 1/4/11
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