Hi Lynn,
My dx has changed from MDS to myelofibrosis (a MPD) and back to MDS. I have been transfusion dependent from dx with HGB 70. My lower limit is 95 - I can´t understand how doctors let patients have HGB as low as 72
. Of cause you are tired! Tell your doctor that good supportive care includes having an acceptable HGB and that you have very low quality of life with this low HGB.
Have you tried Aranesp or similar drugs
? If your SerumEPO is less than 500 you could have good response to this kind of drugs that stimulate the bone marrow.
Kind regards
Birgitta-A
69 yo, dx MDS Interm-1 May 2006, transfusion dependent, Desferal 4 days with transfusions, Neupogen 2 injections/week, asymptomatic