Hi Everyone....Dad with MDS....now on Dacogen
My dad (who will be 80 in Nov) has been struggling with MDS for about 2 years now. He was receiving the weekly injections Aranesp and then Procrit, however, neither of these were raising his blood count which stagnated at @7. A couple of weeks ago his doctor started giving him Dacogen and his blood level dropped to 5.1 and he had to have a blood transfusion. He's now experiencing the many side effects of dacogen (constipation, nausea, fever, chills, etc.) and I was wondering if anyone has any suggestions in how to manage these side effects. Also, if anyone has been treated with Dacogen, do the side effects lessen with each treatment? Has anyone experienced positive results with this drug?
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