Quote:
Originally Posted by Birgitta-A
Hi Sophia,
You know I got neutropenic fever Aug 2007 after four infections without Dacogen and other chemos. My white blood cells had been OK before but since then I have to take Neupogen 2 injections/week. I have managed to avoid infections the last year and feel fine.
Many MDS patients choose - as I have done - to only treat symptoms with packed red blood cell transfusions, iron overload with iron chelators and low white blood cells with Neupogen or similar drugs. Then low platelets will be a problem. I prefer quality of life before quantity but everyone is different and there are no fixed rules for treatment.
We hope that new and better drugs will come but today I don´t think there are any better drugs than Vidaza or Dacogen exept Revlimid that has best effect on patients with 5q chromosome aberration. The response to Vidaza and Dacogen often takes four cycles (that is four months). Revlimid works faster.
Hope your father will continue to recover when his infection is treated!
Kind regards
Birgitta-A
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Hi Birgitta,
Dad is still in the hospital. After his platelet count bottomed out, his hgb dropped to 6.1 and WBC 0.8, he had a blood transfusion on Saturday. He counts are rising, hgb now 8.4, WBC 1.2. However, he started spiking a fever again and sounds very congested. Looks like he has the flu now. His oncologist has ordered xrays for his chest.
So you no longer receive chemotherapy treatment?
Sorry I am not familiar with all the terminology, when you mentioned "chromosone abberation" what does that mean?
Thanks for all your help with this.