There is an excellent article on the 5q- syndrome in the July 2008 issue of Haematologica:
Myelodysplastic syndrome with isolated 5q deletion (5q- syndrome). A clonal stem cell disorder characterized by defective ribosome biogenesis
It describes the syndrome, its history, its relationship to MDS classifications, a case history, lenalidomide treatment and its regulatory status, and research in progress.
The article is technical, but probably understandable for patients who have learned some of the medical terms associated with bone marrow failure.