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Originally Posted by txgirl
Donna,
I am so sorry to see (from your other post) and hear about your Dad's painful feet and hands. I will pray that relief comes soon and in abundance! My dad is also having trouble with swollen painful feet, but it appears to be from excess fluid and the Lasix not being able to pull enough liquid off. Your dad's sores just appear to be something else. Thanks for the support. I agree that we all feel the magnitude and loneliness of this disease and all of its associated problems at times, but marrowforums does help us realize we are not alone!
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Hi, I am just checking in on you to see how you and your Dad are doing and to give you an update on my Dad. The wounds on his feet and hands are Impetago (sp?). They are now cleaning his wounds 2 times a day and wrapping his hands and feet. Dad's white blood cell count is now down very low and his platelets are extremely low. At this point, I don't see much more they can do for him and my Mom told me yesterday to start preparing myself that he might not make it through this crisis. Needless to say, I have been struggling a lot and am really hurting. I am using all of that emotion to rally people I know to help support the legislation that will go before Congress this fall. If you have not heard about it, please go to aamds.org to learn more about it. We family members need to honor those we love who have been battling this disease with courage by working hard at getting this legislation passed. That is how I am dealing with this whole thing. Just wanted to tell you what the wounds were, God forbid your Dad experiences something similar, you don't have to waste the time we did with so many doctors who did not know what it was. If we had someone to figure this all out much sooner who knows where we might be today.
Feel my hug from across the miles.
Donna E