[susaq]

Hi all,

My father (83 yrs) was diagnosed with MDS about 10 years ago and went through chemo for it about 4 years ago when he became transfusion dependant.

He had a hard time with the chemo and did better for about a year but revlimid was causing severe leg pains so he was taken off it. The leg pains never went away.

Over the past 4 months he has been feeling terrible, fatigued, weak, short of breath, nauseaus and became transfusion dependant. After going from doctor to doctor for diagnosis - all the time his hemo/onc was telling him that it wasn't his MDS - he has just been told that he could have leukemia by two doctors - one his hemo/onc. He's scheduled for a BMB next week for confirmation.

My question is what now? I'm thinking that chemo would be too hard for him and take too much out of him and probably be worse than no chemo.

I don't know what to expect now. I don't know how quickly he will need home care, is it painful, how do we find a good hospice provider - what should we be looking for?

I'm hoping that someone who has been through this will be able to help.

Thanks,
Susan