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You've been a fantastic help
Thanks Lisa!
Yes, my doctor has seemed adamant about my staying in the hospital for some time after the ATG is done. My understanding is that ATG stays in the system up to 12 days after the last dose.
The first treatment, he said a month was probably what it would take. I was severe back then, but in 26 days, I had a fever of 101 on ONE measurement, and it turned out to be an mild E-coli infection rapidly treated with antibiotics. The rest of the time I was just bored. I guess I should really have been happy about that! When I started pressing to get out, the guideline was less than 2 transfusions a week. I finally got there, and got out.
If we can agree on getting out 5 days after the last ATG, assuming everything looks good, I think I'd be pretty happy with that. I think that even if I was neutropenic, it might be safer to be at home than in the hospital.
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Male, 56, dx Nov2006 VSAA (BMA:0%). Responded to ATG/CsA/Prednisone/Neupogen Dec 2006, but relapsed in June 2007. Counts are responding to using CsA 200mg bid alone since Jun 2008. Last PRBC tx: Jul 2008.
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