View Single Post
  #3  
Old Sat Oct 25, 2008, 03:24 AM
Chirley Chirley is offline
Member
 
Join Date: Oct 2007
Location: Logan City Australia
Posts: 1,100
Hi,

I just wanted to send you my best wishes. I have not lost any one close to me yet and I'm very grateful for that. When my mother was very ill and we thought we were going to lose her, I just felt so helpless. I couldn't help her and I couldn't console my father. I am grateful every day that she pulled through.

On a more practical note. When I was very sick and was told that I might not survive, I was appreciative of any little thing that was done to make me physically more comfortable. Anything from brushing my hair to wiping my face with a lovely cool scented cloth. My back was sore from staying in bed and it was wonderful when family or friends lightly massaged my back for me. I loved the foot massage that I got. Most of all, I appreciated not only the presence and love of my family and friends, but their intuition in knowing when I needed time by myself, to rest or just think things through. I would not have liked to have to tell them to leave me alone for a while.

My thoughts are with you.

Chirley
__________________
Copper deficiency bone marrow failure (MDS RAEB 1), neuromyelopathy.
FISH reported normal cytogenetics but gene testing showed
Xq 8.21 mutation
Xq19.36 mutation
Xq21.40. mutation
1p36. Mutation
15q11.2 deletion
Reply With Quote