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Forum New Comer
I am new here although dx Sep 2006. This area helps me realize that there is no really set approach to treating MDS. Everyone seems to have a different Therapy and different results. Also helps me realize how lucky I am compared to some of the situations described herein. For 2 years I had transfusions, 2 units every week or two. Developed crud in my lungs Dec. 2007. Started prednizone to treat that and immediately went 21 weeks without transfusion. Hospitalized twice during July and August with 1 unit each time before being released to go home. Now working on 7th week without blood. Hg 11.5, WBC 2.4.
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