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Rob,
I was diagnosed with MDS in July at the age of 47. I haven't had to have any transfusions and haven't been started on any drug therapies. Like you, I was told that I should have a BMT done as soon as a donor was located. Both my hematologist and transplant specialist told me this was the best treatment due to my young age and relatively good health. It is also the only known cure. Most patients diagnosed with MDS do not have this option. Luckily, at my last doctor's visit my counts had stabilized, so he felt that it would be reasonable to wait. My counts are being watched closely and I will be re-evaluated in January.
I know what your going through. Do they offer any classes for BMT patients at City of Hope? I took a class at Stanford and also met with my social worker there. They answered many questions about the transplant and this helped alleviate a lot of my stress.
I wish you the best of luck with your decision.
Jill
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Jill, 58 y/o female dx with MDS-U June 2008, IPSS:Int. 2. Allogeneic SCT May 25, 2010. Relapsed January 2011. Started Vidaza (azacitadine) Feb. 2011; Currently on cycle #58  , IV, 5-days every six weeks. WBC 5.3, Hgb 13.0, PLT 110 (2/16/18)
Last edited by Jill2008 : Fri Nov 14, 2008 at 10:09 PM.
Reason: add info
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