Thread: Newly diagnosed
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  #9  
Old Fri Nov 14, 2008, 05:22 PM
Robsocal Robsocal is offline
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Join Date: Nov 2008
Location: Riverside CA
Posts: 36
Thanks everyone. I am reading all I can about this disease and have learned much from this website. My numbers were pretty good from the last blood test but they are starting my on Dacogen Monday anyway. I am confident that the side effects will be few. It seems strange to start drug therapy when I feel great and my blood counts are holding, but my dr.'s are insisting. Does anyone know if drugs such as Dacogen/Vidaza can actually make you worse? I would love to hear more success stories from long term survivors that had unrelated donors. I met with a social worker from City of Hope yesterday and that was very helpful. She gave me a huge amount of information to go over.
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Rob, age 43, dx MDS Oct. 2008 <4% blasts, many abnormal chromosomes, STC Feb. 09
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