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New Member
Hi All,
Not sure I posted in the right forum. My husband was dignaosed with MDS in Oct. refractory amenia with excess blasts -1, IPSS score Int-2. His counts on 11-10-08 were Hemoglobin 8.6, red blood count 2.77, platelet count 41, white blood count 1.7.
He started Dacogen Monday, Nov. 10th. he took this every day this week, he will be taking it for 5 days straight, then off 3 weeks, then back on. They gave him 2 units of blood of Wednesday after his treatment. Wednesday he was very weak, and tired. The same Thursday. Friday he felt better more engergy. Today Saturday he feels very, very weak.
If anyone has had this treatment or familiar with it please let me know. I have talked with Dr. and he says that the weakness is part of the treatment.
My husband has a irregular heart , and yesterday it was really high 120, but then was jumping down to 96, 70.
anne&dean
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Anne, wife of Dean age 63, dx 10-2-08 with MDS-RAE w/excess blasts-1, IPSS Int 2, started dacogen 11-10-08
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