One of my most dreaded comments is the the one that adresses how good I look. Even makeup can cover up paleness. However, I usually say, Thank you and then respond that my problem is on the inside and doesn't show. I think people mean well, but just don't understand what the problem is. Most people think that I have cancer when chemo is mentioned. Some ask if I will lose my hair. One lady even asked me if I had been given a time limit to live. With so little track record on MDS, who knows that answer.
I just pray that this forum can reach many others. There is no support group in my area. It just helps to know that we are not alone.
Have a great Thanksgiving!
