[flowerlady]

Hi Everyone,

THis past week after 16 months with fantastic results on Revlimid we found out that it was no longer the medication best for me. My counts dropped and blasts doubled. Now it is time for either Dacogen or Vidaza until we can hopefully reach some form of a remission and then a Stem Cell transplant this summer. My brother is a complete match but the answer is ...where to go for the procedure. I would appreciate the view of you wise folks and have already begun investigating Dan Faber and Seattle Cancer Alliance/Fred Hutchinson. I have an appointment sat Moffitt this week as it is closest to my families. Concerns being what I can do to make my brother and his family most comfortable about what he will be going through and his recuperation and if there are any long term side effects of being a donor. I have an incredible family for which I am very thankful but what I can do to give my husband,children and parents some comfort and ease their minds as well. I suspect, I will be pretty well taken care of during this time but, I am very concerned for my loved ones. Also any pointers on insurance, and mostly just some advice from anyone who has experienced this....Thank you all for your support...