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Hi Rob!
I am 48 and was diagnosed with MDS in July. I was also told to have the transplant done while I am healthy. It was to be scheduled as soon as a donor was found, but my counts are not declining as rapidly as they were at first. The recommendation was made to put it off for now and watch my counts. I am taking this time to put on weight (I am 5'9" and weighed 124 lbs.) and work out at the gym to build up my strength. I now have four matched donors. It's a scary decision to make when you are young and feeling relatively well. Our friends are shocked when we tell them because I don't look ill. What are your counts like and have you needed any transfusions?
Jill
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Jill, 58 y/o female dx with MDS-U June 2008, IPSS:Int. 2. Allogeneic SCT May 25, 2010. Relapsed January 2011. Started Vidaza (azacitadine) Feb. 2011; Currently on cycle #58  , IV, 5-days every six weeks. WBC 5.3, Hgb 13.0, PLT 110 (2/16/18)
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