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Thanks Ruth, Jill, and Neil for your helpful responses. You are right Jill - my friends say I look as good as I ever did... and I feel absolutely fine. My numbers are generally on the rise, WBC 2.1, HGB 11, HTC 32.2, PLT 75, RBC 3.83. I get tested weekly and my numbers are slowly creeping up on their own. The only transfusion I ever received was when I was hospitalized with pneumonia (which is what led to my MDS diagnosis in the first place.) I have not taken any type of medication for it except for antibiotics to keep me from catching anything. I am really unsure if doing the transplant at this point is my best option considering the risks, but my doctors seem to think so. I am inclined to "watch and wait." Also, my primary oncologist says working is a very bad idea (restaurant management) and has put me on disability which doesn't cover my considerable expenses and I find myself getting closer and closer to a financial meltdown so maybe getting the transplant now will cure me and let me get back to a normal life, I just don't know. Anyone in similiar circumstances?
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Rob, age 43, dx MDS Oct. 2008 <4% blasts, many abnormal chromosomes, STC Feb. 09
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