Thank you so much DK!! I too feel it is important to know exactly what is causing all these disorders in my son. I am getting frustrated that is why I turned to these boards. My son's hematologist wont give me details anymore because I question EVERYTHING. You seem to have great knowledge-do you have PNH or AA?? Who would you recommend me to take my son to? we live on the west coast (Vegas)-we have family in Bham alabama --I have been told that the children's hospital there is one of the best.
Debi :-))
|