Hi Vera,
I haven't been through a transplant but see the potential for one in my future. Although our MDS subtypes are different, are situations have similarities. I also feel "healthy" even though I have low counts in all my lines. It's hard for me to believe that I am as sick as the doctors say that I am! I've just gone through ATG therapy and am showing signs of responding as measured in the time between my transfusions. However, like you, this treatment is just buying me time - there is no cure for MDS without a transplant. You are young and strong. I think you are making a wise decision. I wish you the best!
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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