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Hi Arlene,
I know everyone is different, but for me the ATG wasn't bad at all. I had a very high fever and chills on the first night and one day of serum sickness the day after the ATG ended (fever, abdominal pain, swelling, vomiting, diarrhea). I would get headaches during the actual infusion, but that was it. The worse part was not knowing how bad it was going to get. I must say that I felt stronger almost immediately after receiving the first dose of ATG (excluding that first night), and every subsequent day that I got it. It definitely turned a switch in me. I just hope it stays switched, as the longevity of remission can be a lot shorter for MDS than for AA.
That is encouraging that Cyclosporine alone is working for your husband. I hope the platelet drop is only temporary.
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58 yo female, dx 9/08, AA/hypo-MDS, subclinical PNH, ATG/CsA 12/08, partial response. small trisomy 6 clone, low-dose cyclosporine dependent
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