Thread: MDS survivors
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Old Thu Mar 26, 2009, 12:13 PM
Ruth Cuadra Ruth Cuadra is offline
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Join Date: Jul 2006
Location: Los Angeles, California
Posts: 616
Hi, Kathy.

I am always in favor of getting a second (or even a third) opinion in cases of serious disease like MDS. That said, your doctor is correct to caution you that Vidaza is not a cure and that, if it helps as it seems to help you, you will likely have to stay on it to keep your MDS in remission. However, the doctor cannot say when or even if your MDS might progress to leukemia. Not all MDS patients transform to leukemia, but it is true that leukemia that comes from MDS is harder to treat than leukemia that arises on its own. Hearing dire predictions from someone in whom you've placed your trust is demoralizing and for that reason you might want to see what other doctors have to say about your situation.

Regards,
Ruth
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Diagnosed AA 10/96, MDS/RA 6/98, MUD/BMT 10/6/98
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