Sun Mar 29, 2009, 11:42 PM
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Member
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Join Date: Jul 2008
Location: Somerset, NJ USA
Posts: 30
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You have my prayers and support
Quote:
Originally Posted by josey63
First of all I am really glad I found this forum. Diagnosed with MDS in 2006, doctors feel it is the result of me having AA as a teenager, I am a grandmother now. My biggest problem is a low platlet count 15, which makes me unable to take most of the new drugs out for MDS. I am on Danazol which is suppo0se to help my platlet, hasn't yet and procrit weekly. I get transfusions about every 3 months and platlets if I need any type of surgery like placing the port I have for blood draws and transfusions. Also I am on antidepressents though I doubt I am alone on that. I have 2 sons, 2 grandsons and a sister, but poor family support. So I guess I am looking for some here with people who understan what I am going through. Josey
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Dear Josey,
My father has MDS and has been fighting for so many years. He is very fortunate that he has my mom. I was just there today and realized I need to help her at least on Sundays as she has so much to do. Do your sons or sister live close by? I will pray that your family comes to your aide. I know what courage it takes for MDS patients to live with this illness and I hope that you gain strength from this forum. I have. My Dad took Procrit and Neupogen for years to treat MDS. Hold onto hope and know that there are people out here who care . . .
Love,
Donna
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