Quote:
Originally Posted by Lynn del
Hi Bill:
When I went to Dr Castro he told me to take prednisone, but my heart races on it and I get very hyper. I take 20 mg and it helps with the pain but I have to take adavan with it. Doesn't prednisone cause yeast, and also I'm on antibiotics again and I know that causes yeast. They gave me the losenger also and I eat yogurt everyday. I also had diflucan and the yeast seems to go away then it comes back. He didn't give me cyclosporine because I had an allergic reaction on it after the horse ATG. But I told him to let me try it since it's been 10 years, but he didn't. So since I'm having the yeast problem, that means that my immune system is compromised
so my blood counts should start to come up? It's over a month and I feel so weak, I'm doing more than when I first came home, but there are days I can't function. Now I'm getting the sweats and I can't breath when it happens, I had this for a week after the horse ATG. Maybe the ATG is trying leave my system. Thanks for all your help. Lynn
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Hi Lynn,
Wow, your situation really makes me feel thankful that I tolerated all those meds as well as I did. Going through ATG without enough Prednisone to counteract it's effects is tough! And rabbit ATG to boot.
My guess (and it is just that), is that since you only had the ATG, and not the CsA with it, as is the norm, that you might take longer for a response. In my case, the second treatment has been CsA alone, and it took 3 months before my counts stopped declining, and another 3 months for them to slowly start inching up.
Given your problems with the usual meds, you might want to consider a clinical trial that uses entirely different ones. There is one with a drug called Campath, and it does not use ATG or CsA. And then there is always Dr Brodsky's alternative treatment.
I sympathize with all you are going through. The 90 days after the ATG treatment are hard. Think of it: you had
rabbit antibodies flowing through your system, wiping out lots of different cells and wreaking good havoc as well as bad, and you did it without much help from Prednisone. You are one tough customer!!! Hang in there!