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Your Mom
Hi Amy, I don't know anything about aranesp. Have you researched it personally? I know with some of these drugs your counts will go down before they go up. What I was going to tell you is if you are not happy with that doctor go on line research doctors. Go to a bigger City, a medical center.. a teaching college,find someone who specializes in MDS..Call around there are alot of really good doctors and it is hard enough to have this disease. your mom should be very happy with her doctor!! I had RAEB II, 11-12% blasts. My doctor NEVER told me I could die in ANY amount of time.. He said untreated that I could progress to AML and he gave me tons of options including transplant. Your mom is 8 years older than me..she is not to old for a transplant! Within one week of my DX I was offered a clinical trial, vidaza and a transplant option.. Now i am in complete remission and waiting for my transplant! Also my doc monitors my blood counts like a hawk..have you asked her doc if it is normal for the counts to go down? Mine said that it meant the vidaza was working and it did quite well! These doctors are there to work for you!! If they make you(or mom) feel hopeless find someone new..
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Vera, 56 yo female Dx RAEB II 10-08, 11-12% blasts. Normal chromosomes. Started Vidaza 10-08. . Improved Dx 3-09 MDS RA 2% blasts 8 cycles Vidaza! SCT transplant 7-1-09 at UCSF. Normal bone marrow and MDS free as of 10-09 
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