Hi Mike,
You know MDS means Myelodysplastic syndromes. Syndromes mean many diseases with some symptoms in common. That's why we are so different.
I was dx when I was 67 yo May 2006 with MDS Interm-1 (RMCD) with very servere fibrosis, few cells and no signs of high blast level in the bone marrow. I have only got supportive treatment because as long as I am totally asymptomatic I won't try any kind of chemo.
My latest bone marrow biopsy in April 2009 showed the same picture as May 2006 so I continue with supportive treatment - blood transfusions, Desferal and Ferriprox (not allowed in the US) for iron overload and Neupogen injections for low white blood cells.
Good luck with w&w
!
Kind regards
Birgitta-A