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Old Fri May 22, 2009, 04:18 PM
Dick S Dick S is offline
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Join Date: Jan 2008
Location: Florida
Posts: 189
Quote:
Originally Posted by Mike M View Post
I was diagnosed to have MDS last November and later, specifically RCMD, risk level 1. I have come to realize that I'm at the very begining on this disorder and wonder if there are others in a simular situation or where diagnosed at this level. Also is there any information on how this will progress? Thanks.
Don't fell bad and don't feel you are alone. This disease is ever progressive and no two people slide down the slope at the same rate, I am a case in point.
I have been DXed with the same as you, MDS RCMD, and that was back in Feb. 2006 and I am still on the "wait and watch" list. Things are getting close for me with a 10 HGB and 31 HCT, so I feel some treatment is on it's way soon. In the mean time I just put up with the tired butt and fatigue.
Hang around here on the forum, it can be a comforting feeling and good luck on your journey with us.
See my tag line.
__________________
Dick S, diagnosed Feb. 2008 with MDS. Last BMB April 2016. New diagnosis is CMML stage 1.
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