[JEZ]

Originally Posted by Lynn del

I felt the same way after the ATG. I was worse than when I went in. My counts are still not responding, and I couldn't be alone when I came home or drive. The serum sickness is bad, the pain is unbearable. Down my legs and arms the skin is numb, and if you touch it it is very painful, then, of course, there is the shooting pains. And then there is weakness. I haven't heard of anyone else getting the numbness/pain. I had it last time with the horse ATG, but not as bad. I think it helps if you have a good support system but I don't have that with my family.
Now I have to take exjade, and I'm having an allergic reaction to it.
How is everything now, are all your count normal? Hope all is well with you and God Bless, Lynn

Lynn,

Thank you for your concern for me at a time when you are going through so much... I wish I knew more about iron overload and the meds you are trying. Know that my heart felt concern is with you.... I have just had to stop my cyclosporine after a successful 2 year run with it (indications of kidney toxicity) and am trying a new drug (generic Imuran) as an immunosuppressant... my counts are terrific now and I am hoping and praying they stay that way. I just stopped the cyclosporine yesterday and started the Imuran 2 wks ago..... Hope all has turned around for you.... JEZ